If we could take away the SMS, we probably would, but despite all of the struggles our children face they amaze us every day with their curiosity, determination and humour. Such a joy and a blessing to have them in our lives! Thank you for your time and support through our Sponsor our Smile campaign!
Additional support organizations in Germany and Denmark offer information for parents and caregivers. Visit these sites at: Germany SMS Website Denmark SMS Website
There are a couple of newer foundations that have formed in the US over the last few years who are also dedicated to supporting SMS. Taylor Bug Kisses Foundation is dedicated to providing funding for medical research, educating, and providing financial assistance and emotional support for families who have a child with Smith-Magenis Syndrome.Taylor Bug […]
An Organisation that supports parents and carers in France. ASM17 France Pas à Pas avec Alexia
The Organisation that supports those is the UK is The Smith-Magenis Syndrome Foundation UK. The Foundation is a small UK registered charity that supports families, who have children of all ages, with Smith-Magenis Syndrome and provides information for professionals working with these families. Smith-Magenis Syndrome UK Foundation
There are a few volunteer, parent-led organizations working to better the lives to those affected with SMS. These organizations do so many good things and we sincerely appreciate their hard work! PRISMS (Parents and Researchers Interested In Smith-Magenis Syndrome) is dedicated to providing information and support to families of persons with SMS, sponsoring research and […]