smith-magenis

Smith-Magenis Syndrome Fact 30

November 30, 2019 By // by smith-magenis

If we could take away the SMS, we probably would, but despite all of the struggles our children face they amaze us every day with their curiosity, determination and humour. Such a joy and a blessing to have them in our lives!

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Smith-Magenis Syndrome Fact 29

November 29, 2019 By // by smith-magenis

Additional support organizations in Germany and Denmark offer information for parents and caregivers. Visit these sites at:

Germany SMS Website

Denmark SMS Website

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Smith-Magenis Syndrome Fact 28

November 28, 2019 By // by smith-magenis

There are a couple of newer foundations that have formed in the US over the last few years who are also dedicated to supporting SMS.

Taylor Bug Kisses Foundation is dedicated to providing funding for medical research, educating, and providing financial assistance and emotional support for families who have a child with Smith-Magenis Syndrome.Taylor Bug Kisses Foundation.

The Smith-Magenis Research Foundation supports research to improve the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed to improve the quality of life of those with SMS.
Smith-Magenis Syndrome Research Foundation.

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Smith-Magenis Syndrome Fact 27

November 27, 2019 By // by smith-magenis

An Organisation that supports parents and carers in France.
ASM17 France

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Smith-Magenis Syndrome Fact 26

November 26, 2019 By // by smith-magenis

The Organisation that supports those is the UK is The Smith-Magenis Syndrome Foundation UK.

The Foundation is a small UK registered charity that supports families, who have children of all ages, with Smith-Magenis Syndrome and provides information for professionals working with these families.
Smith-Magenis Syndrome UK Foundation

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Smith-Magenis Syndrome Fact 25

November 25, 2019 By // by smith-magenis

There are a few volunteer, parent-led organizations working to better the lives to those affected with SMS. These organizations do so many good things and we sincerely appreciate their hard work!

PRISMS (Parents and Researchers Interested In Smith-Magenis Syndrome) is dedicated to providing information and support to families of persons with SMS, sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. PRISMS Website