Support My Smile is a fundraising website for the SMS Foundation UK to raise money, and awareness, for families living with Smith-Magenis syndrome.
Here are some of the ways the SMS Foundation support families:
- Provide information – we have a variety of literature available on the website or in booklet form
- We provide small grants (up to £500) to improve the quality of life of the person with SMS, and financial support (up to £200) for social events (get-togethers) for members to connect with other SMS families and share experiences
- Sponsorship of research into the key symptoms of Smith-Magenis syndrome
- Direct any questions you have to relevant professionals. We are not medical professionals, so any questions related to sleep, medication, behaviour etc we will forward on to our board of professionals who do know
- Provide emotional support on the phone or in-person
- Provide information for interested parties ( e.g housing/education etc) about Smith-Magenis Syndrome
- Organise biennial conferences which allow our Smith-Magenis syndrome community to share information, experiences, ideas and knowledge
- We promote awareness of SMS through our partnerships with other charities and organisations including Cerebra, Genetic Disorders and Jeans for Genes
- Fundraising events – As this not only raises much-needed funds for the foundation it also creates an awareness of Smith-Magenis Syndrome
- Media campaigns – We have been involved in organising or directly taking part in TV interviews, radio interviews, as well as newspaper and magazine articles to discuss Smith-Magenis Syndrome
