There are a few volunteer, parent-led organizations working to better the lives to those affected with SMS. These organizations do so many good things and we sincerely appreciate their hard work!
PRISMS (Parents and Researchers Interested In Smith-Magenis Syndrome) is dedicated to providing information and support to families of persons with SMS, sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. PRISMS Website
Share My Smile – Gallery of Smiles
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Smith-Magenis Syndrome Fact 24
