Additional support organizations in Germany and Denmark offer information for parents and caregivers. Visit these sites at:
You can make an online donation through our Charities Aid Foundation (CAF) Account.
The Foundation was first started as a support group in 1992 by Julie Jowitt, known then as the SMS Contact Group. With the help of Contact-A-Family the group developed from an initial set of 6 families by writing to doctors all over the world who then sent information and referred families on to Julie. Read More…
BCM Smith-Magenis Syndrome Foundation
London WC1N 3XX
Tel: 0300 101 0034
Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.